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Contact Your Policymakers

Urge Congress to Protect Parkinson’s Caregivers’ Rights

Family and friend caregivers provide vital emotional and physical support to people with Parkinson’s disease (PD) who reside in long-term facilities, including nursing homes. Family and friends also serve as care advocates and liaisons with nursing home staff. Medicare data shows that 25 percent of people with PD on Medicare live in a long-term care facility. The Michael J. Fox Foundation (MJFF) recognizes the pivotal role of essential caregivers who advocate for their loved ones’ care and treatment in these facilities. 

Data shows that people with Parkinson’s experience social isolation and loneliness, a problem which only became more severe during the pandemic. A bipartisan bill, the Essential Caregivers Act of 2021, would help address these challenges. It would guarantee visitation rights to two designated “essential caregivers” per resident during a public health emergency. 

On behalf of the Parkinson’s community, MJFF is urging Congress to pass this important legislation — and we’re asking you to join us. Contact your lawmakers today and ask for their support of people with PD and their caregivers.

How to send an email: 
Complete the form below to find a pre-written email you can send to your lawmakers. We encourage you to personalize this message with your own experiences!

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