Share Your Story

We want to hear from you! Every individual impacted by Parkinson’s has their own story to tell. The Michael J. Fox Foundation is seeking to amplify the unique stories of our community — from patients, families, care partners, researchers and anyone touched by this disease. After you submit this form, a member of our team may contact you for additional details. Your story could be featured on our channels.

Thanks for your interest. We can’t wait to meet you.

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Birth Day

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Gender

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What is your primary connection to Parkinson's disease (PD)?

What year were you diagnosed with PD?

I’m interested in sharing my story as a...

Tell us about your Parkinson’s journey. What signs/symptoms did you first notice? What are the most challenging aspects of the disease to date? Have you found resources (online or in-person) to be helpful? Anything else you’d like to share.

Tell us about your journey caring for someone with Parkinson’s. How do you navigate managing a loved one’s care? Have you found resources (online or in-person) to help your journey as a loved one? Anything else you’d like to share from a care partner perspective?

Are you a participant in the Parkinson’s Progression Markers Initiative (PPMI) study?

Do you act out your dreams or have REM sleep behavior disorder?

Do you have loss of smell?

Open-ended question: Do you participate in PPMI at a medical center or online? Please share more about your experience in PPMI.

Open-ended question: What motivated you to enroll in PPMI?

What kind of study are you participating in? Please specify title, location and any other details.

Tell us about your role as a Parkinson’s policy advocate. What policy priorities are you most interested in (e.g., research funding, access to care, eliminating environmental exposures, etc.)? Are you interested in federal policy, state policy or both? Have you experienced any environmental exposures to chemicals like paraquat or trichlorethylene (TCE)? Why is raising your voice important to you?

Tell us about your role as a Michael J. Fox Foundation donor or fundraiser. What is your motivation for giving to or supporting the Foundation?

Please tell us about yourself.

Please add me to the email list for receiving news and announcements from The Michael J. Fox Foundation.

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