In our latest podcast Jon Palfreman ó journalist, friend of the Foundation and person with Parkinsonís ó speaks with Dave Iverson, who shares those traits, about his life with the disease and his new book. Palfremanís Brain Storms: The Race to Unlock the Mysteries of Parkinsonís Disease is now available on Amazon and BarnesandNoble.com.
Palfreman was first introduced to Parkinsonís disease through his work on the 1985 PBS documentary ďThe Case of the Frozen Addict" and the book The Case of the Frozen Addicts. Both tell the story of people who developed rapid-onset Parkinsonís symptoms after exposure to heroin contaminated with the neurotoxin MPTP.
Years later Palfreman began experiencing the motor symptoms of Parkinsonís disease himself and was diagnosed in 2011.
ďI wish I could say I behaved in a sophisticated way because I knew something about Parkinsonís, but I behaved the way I think many people behave. I went into the stages of grief,Ē Palfreman says.
He quickly realized, however, that he could use his unique situation.
ďMy destiny was to use my training as a journalist and my insights as a patient to write something and try and make a contribution to this thing that Iíd found myself in,Ē he says. ďParkinsonís was now my journalistic beat, like it or not.Ē †
In Brain Storms, Palfreman serves as correspondent telling the story of Parkinsonís research and therapeutic development Ė from genetics and proteins to levodopa and deep brain stimulation Ė and he interjects his own experience as appropriate.
ďThrough keen and captivating storytelling, Jon Palfreman expertly shares the many challenges and opportunities that surround Parkinsonís research and gives credit to the people who have made drug discovery and development possible ó most of all, the individuals living with the disease,Ē says MJFF CEO Todd Sherer, PhD, of the book.
Read more from Palfreman on the impact of his Frozen Addicts investigation.†