Advocate for Policy Change
As people living with Parkinson's and their loved ones know, you can, and often must, be your own best advocates. No one knows the complexities of the journey with Parkinson's, the intricacies of the health care system, and the need for research better than those who are touched by the disease. As lawmakers regularly introduce new proposals and legislation with the potential to affect our community, a robust and coordinated advocacy effort is key to supporting patients, families and care partners. Sharing your personal story with elected officials, contacting Congress members to voice support or opposition for specific bills, and educating others on public policy issues and the importance of advocacy are all ways to get involved. Anyone can become an effective advocate.
By helping policymakers understand what is fundamentally important to those who know Parkinson's disease intimately, you can shape their decision-making. It can be as simple as picking up the phone or sending an email to your Congress member (using our system below) to let them know how their vote will directly affect you. Or, you can meet them in person or connect on social media. (Check out our Advocacy Toolkit for tips on building relationships with your lawmakers.)
There are many ways to advocate. No matter what you choose, you'll be playing a vital role in supporting the Parkinson's community.
contact your lawmakers
Download our Advocacy Toolkit
Find tips on building relationships with lawmakers and interacting on social media, and print handouts for in-person meetings with elected officials.
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