We look forward to seeing you in Washington!

You can prepare for the Forum by exploring the resources on this page.
As the event approaches, materials for your Hill Day meetings will be added.

Event Agenda

Media Materials

Educational and Background Materials



Thank you to our 2018 Parkinson's Policy Forum Supporters

Media Materials

Template Press Release: Customize this sample press release with your personal information.

Talking Points and Pitch Instructions: Get more information on how to share your release with news outlets and read key messages you can use when talking to media.

Forum group leaders have taken part in a media training webinar. You can view that webinar here. Please reach out to your group leaders or info@parkinsonsforum.org if you have any media questions.†

Educational and Background Resources

How to Contact Congress: Explore information on how to call, email and tweet at your lawmakers.†

Template Email to Lawmakers: Use this text to reach out to your legislators; in it you'll find our policy 'asks.'†

Lawmakers' Social Media Handles: Use this list of twitter handles to tweet at your members of Congress.†

Policy Talking Points: Find out more about our research funding requests and how to talk with your lawmakers about these issues.†

How to Tell Your Story: Advocates give examples of how they use their personal stories to influence public policy.†

Glossary: Explore commonly used policy and research terms.

Award Winners: Learn more about our awardees and the work that they've done to support our community.†

Unified Parkinson's Advocacy Council: Learn more about the different Parkinson's organizations that are working together to impact policies that affect people with Parkinson's and their loved ones.†

Welcome to Washington: Read an overview of the legislative process and learn more about what to expect on Hill Day.


Q: What is the Forum?
A: The Parkinsonís Policy Forum annually unites members of the Parkinsonís community and lawmakers to discuss and take action on pressing patient needs and policy opportunities. The Forum concludes with ďHill Day,Ē a full day of meetings on Capitol Hill where advocates educate elected officials on Parkinsonís and the ways policy impacts research and care.

Advocacy training sessions will be held on Monday, March 19, and Tuesday, March 20, at the Omni Shoreham Hotel. Meetings will take place on Capitol Hill on Wednesday, March 21, and will conclude by 5 p.m. that day.

Q: What is a meeting like? What will I discuss with my representative or senator?
A: Your group will arrive at the memberís office a few minutes before your appointment time and your group leader will check in. You then will meet with your senator, representative or one of their staff members. Participants will introduce themselves and the group will discuss several issues that matter to people with Parkinsonís. As space can be limited in some offices, these meetings may take place in a hallway or a small meeting room. At the Forum training sessions, we will discuss the messages to be conveyed at the meeting as well as other points of conversation.

Q: What do I do after my meetings?
A: The in-person meeting is just the beginning! Within a few days of your visit, make sure to send a thank you email (ask for the business card of the person you met with in order to do so). We will provide you with draft email text that will remind lawmakers and staffers about the issues you discussed. Keep in touch! Feel free to send the staff member items relevant to you and the broader Parkinsonís community.

Q: How can I get involved on social media?
A: When discussing the event and your meetings on social media, be sure to use the hashtags #parkinsons and #act4PD. You also can search for these hashtags on different social channels to have a conversation with others using them throughout the Forum.

Q: How will I get to Capitol Hill for my meetings?
A: Shuttle busses will transport all advocates to and from the Omni Shoreham Hotel and Congress on Wednesday, March 21. Please see the Capitol Hill map in your folder for more specific information.

Q: How will I know where to go for my meetings?
A: You will be with a group of several other Forum attendees. We will designate a group leader and provide them with training before the event. You will be given a map of Capitol Hill, and security officers in the House and Senate are always available to assist you.

Q: How should I prepare for Hill Day?
A: Please wear business attire for Hill Day. You will be on your feet much of the day, and your schedule will include moderate walking between meetings, so please wear shoes that are comfortable. If you have DBS or other medical devices, please tell the Capitol Hill security officer inside the entrance of the building so they can make alternate plans for your security screening. Make sure your cellphone is charged before leaving the hotel as there are limited places for you to charge your phones in the Capitol Hill complex. We will provide all the materials and talking points for your meetings during our Forum training sessions.

Q: I need to go to the airport straight from Hill Day. What should I do with my bags?
A: Please allow time to return to the hotel to collect your bags before heading to the airport. Large bags are not permitted in Capitol Hill offices.

Q: When will I see my final schedule of meetings?
A: You will receive your schedule during the Forum training sessions. Please note that schedules may change at the last minute.

Q: What meals will I be responsible for?
A: The following meals will be provided to all Forum attendees:

- Light lunch fare and dinner on Monday, March 19
- Breakfast and lunch on Tuesday, March 20
- Breakfast on Wednesday, March 21

Attendees are responsible for all other food or beverage costs, including lunch on Hill Day, March 21. There are several cafeterias on Capitol Hill where you can purchase food.

Q. Is there someone I can call if I have a question while on Capitol Hill?
A: If you have a scheduling question, call Soapbox at 202-362-5910. If you have logistical questions, call Sarah DeNapoli at 813-541-8858. If thereís an emergency, contact the Capitol Police at 202-225-0911 in the House and 202-224-0911 in the Senate.


If you have any questions or concerns please email info@parkinsonsforum.org