We look forward to seeing you in Washington!
The Parkinsonís Policy Forum annually unites members of the Parkinsonís community and lawmakers to discuss and take action on pressing needs and policy opportunities. The Forum concludes with ďHill Day,Ē a full day of meetings on Capitol Hill where advocates educate elected officials on Parkinsonís and the ways policy impacts research and care.
Advocacy training sessions will be held on Monday, September 9 at the J.W. Marriott Hotel in Washington, D.C. Meetings will take place on Capitol Hill on Tuesday, September 10, and will conclude by 5 p.m. that day.
You can prepare for the Forum by exploring the resources on this page.
As the event approaches, materials for your Hill Day meetings will be added.
Scroll down to learn more about:
Application and Scholarship Information
Thank you to our 2019 Parkinson's Policy Forum Supporters
The Forum agenda will be available shortly.
Programming will begin early the morning of Monday, September 9. Attendees will be on Capitol Hill (also called Hill Day) on Tuesday, September 10 with no programming planned for the end of the day. The Parkinson's Policy Forum organizers will schedule your Capitol Hill meetings and will work with your travel schedule.
The Parkinson's Policy Forum has contracted a reduced rate at the JW Marriott in Washington, D.C. Rooms for single or double occupancy are $289.00, plus taxes and fees per night.†
Located across the street from The White House, the JW Marriott is in the heart of Washington, D.C. The closest airport is Reagan National Airport, but is also easily accessible to Baltimore-Washington International Airport or Dulles International Airport. Amtrak trains are also easily accessible via Union Station.†
There are a limited number of travel scholarships available. More information about the scholarships and how to apply is below.†
Application and Scholarship Information
Individuals can apply to the 2019 Forum and request a scholarship using the same form, found here. This form must be completed and submitted by Friday, May 24, 2019. There are a limited number of spots. As such, the Michael J. Fox Foundation (MJFF) and Parkinson's Foundation have initiated a rigorous review process and will consider several criteria when evaluating Forum applications:
~ Did the applicant call, email or meet with their lawmakers through the year?
~ Does the applicant use social media to interact with their legislators?
~ Does the applicant participate in Parkinson's advocacy work at the state or local level?
~ Did the applicant respond to Parkinson's Foundation or MJFF action alert emails in 2018?
~ What other Parkinson's Foundation and/or MJFF activities does the applicant participate in?
~ Does the applicant advocate for other issues outside of Parkinson's disease?
Who Can Apply to Attend?
Anybody who is interested in advocating on behalf of finding a cure for Parkinson's disease is encouraged to apply to attend the Forum. This year, Parkinson's Foundation and MJFF have targeted representatives and senators based on their leadership positions or seats on specific committees. On Hill Day, advocates will focus their message to these members who have oversight on access-to-care issues or federal research dollars. Because of this, we will give priority to the applicants who live in these officials' states or districts. We look forward to welcoming first-time advocates to the Forum who are constituents of these elected officials and interested in getting involved in this work.†
Accepted applicants who require assistance with their medical needs may bring a care partner to the Forum. Although care partners are encouraged to advocate alongside their loved one, they do not need to fill out a separate application. Simply indicate their name on your own application. If you have additional family members or friends who are interested in attending the Forum, they must apply separately.†
Please note, Parkinson's Foundation and MJFF cannot provide medical care or assistance to Forum attendees including, but not limited to, providing personal care and/or assistance with activities of daily living or mobility (e.g. pushing wheelchairs, etc.).
A limited number of full or partial need-based Forum scholarships are available. We ask that only those who require financial assistance request a scholarship. Our guidelines for determining scholarship support are outlined below:
~ There is no need to fill out a separate scholarship form. Simply indicate your need for financial assistance at the end of your Forum application.
~ Individuals may apply for full or partial scholarships covering transportation, hotel or both. (There is no registration fee to attend the Forum). The contracted room rate for the J.W. Marriott is $289 a night, plus taxes and fees.
~ Scholarship decisions will be based on financial need and the above application criteria.
~ Scholarship need is not a factor in determining whether an individual is invited to attend the Forum.
~ Applicants will be told whether or not their Forum application has been accepted and if they received a scholarship on a rolling basis. You will hear from us no later than 6:00 p.m. ET on Friday, June 14, 2019, via email.
~ All scholarship recipients are expected to attend all Forum programming, including pre-Forum webinars and meetings with legislators on Capitol Hill. The Forum organizers have contracted wtih a travel agent to assist in making travel arrangements for scholarship recipients.
~ Your care partner can apply for a need-based scholarship to cover their travel costs.†
Q: How do I schedule meetings with my representative and senators?
A: The organizers for the Policy Forum have contracted with a company that will schedule Capitol Hill meetings for attendees. You will receive more information about your schedule and how to prepare as we get closer to the Forum.†
Q: What is a meeting like? What will I discuss with my representative or senator?
A: Your group will arrive at the memberís office a few minutes before your appointment time and your group leader will check in. You then will meet with your senator, representative or one of their staff members. Attendees will introduce themselves and the group will discuss several issues that matter to people with Parkinsonís. As space can be limited in some offices, these meetings may take place in a hallway or a small meeting room. At the Forum training sessions, we will discuss the messages to be conveyed at the meeting as well as other points of conversation.
Q: How will I know what to say in my meeting?
A: You will receive written materials prior to the Forum, as well as trainings on Monday, September 9 at the Forum. Additionally, prior to the Forum, there will be two webinars to help attendees prepare for the trip to Washington.†
The two webinars will cover logistical information, as well as provide training on advocacy and the issues that we will be discussing. Participation in the webinars is required and recordings of the presentations will be made available on this website. The webinars are currently being scheduled and the dates and topics will be posted here as soon as they are scheduled.†
Q: How will I get to Capitol Hill for my meetings?
A: Shuttle buses will transport all advocates to and from the J.W. Marriott and Capitol Hill on Tuesday, September 10. More specific information will be available at the Forum.†
Q: How will I know where to go for my meetings?
A: You will be with a group of several other Forum attendees. We will designate a group leader and provide them with training before the event. You will be given a map of Capitol Hill, and security officers in the House and Senate are always available to assist you.
Q: When will I see my final schedule of meetings?
A: You will receive your schedule during the Forum training sessions. Please note that schedules may change at the last minute.
Q: What meals will I be responsible for?
A: The following meals will be provided to all Forum attendees:
~ Breakfast, lunch and dinner will be available on Monday, September 9
~ Breakfast on Tuesday, September 10
Attendees are responsible for all other food or beverage costs, including lunch on Hill Day. There are several cafeterias on Capitol Hill where you can purchase food.
Q: What do I do after my meetings?
A: The in-person meeting is just the beginning! Within a few days of your visit, make sure to send a thank you email (ask for the business card of the person you met with in order to do so). We will provide you with draft email text that will remind lawmakers and staffers about the issues you discussed. Keep in touch! Feel free to send the staff member items relevant to you and the broader Parkinson's community.
If you have any questions or concerns please email firstname.lastname@example.org