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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Mike Kinnett headshot

    My Research Journey: Why I Raised My Hand to Participate Shortly After Diagnosis

    Sometimes, a long-awaited diagnosis can lead to a certain sense of relief. For Florida resident Mike Kinnett, age 66, the confirmation of a Parkinson’s diagnosis answered several lingering questions,…
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  • Hyam and Tom Kramer

    My Research Journey: “Hope begets more hope”

    Hyam Kramer, 62, explains why he joined the premier Parkinson’s research study shortly after receiving a Parkinson’s diagnosis.
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  • Man smiling

    My Research Journey: I Lost My Sense of Smell but Gained Perspective on Parkinson’s

    Joseph Capizzi shares his journey participating in Parkinson’s research after learning he had loss of smell.
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  • Otis and Linda Peeples

    My Research Journey: From Falling Out of Bed to Participating in a Parkinson’s Study

    When Otis Peeples learned about the connection between REM sleep behavior disorder and Parkinson’s, he took action and joined a research study.
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  • Team Fox Ninja Creates Video to Spread the Word about Parkinson’s Research

    Community member Bryan Hill shares his experience with young-onset Parkinson’s disease and inspiration for developing a video to spread the word about the Parkinson’s Progression Markers Initiative.
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  • Two people smiling at camera

    My Research Journey: On the Road for PPMI

    JP Smith shares his experience traveling to a medical center for a PPMI screening visit.
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  • Man smiling

    My Research Journey: Participating for Family

    Jerry Pollack explains why he participates in the Parkinson’s Progression Markers Initiative to honor his family members who had Parkinson’s.
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The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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