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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Stop If You Can't Smell the Roses

    Stop If You Can't Smell the Roses

    “It makes you more knowledgeable. It makes them more knowledgeable. Everyone wins,” says Lynn Kermode of clinical research participation.
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  • This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    This Clinical Trial Participant Isn't One to 'Sit on the Sidelines'

    Bryan Toronyi talks about his experience participating in a clinical trial.
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  • Taste the Broccoli

    Taste the Broccoli

    To those who may be interested in clinical research but have concerns, PPMI participant Judy says, “At least go for the initial interview. Don’t say ‘I don’t like broccoli’ if you haven’t tasted it!…
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  • I'm Not Scared of My Genetic Status; I'm Empowered

    I'm Not Scared of My Genetic Status; I'm Empowered

    Jessi Keavney, a guest blogger for FoxFeed, shares her story of finding out her genetic status, and how she took charge after finding out that she has a LRRK2 mutation.
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  • Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Fox Trial Finder Ambassador Brings Attention to Urgent Need for Trial Volunteers

    Gary Rafaloff is a Fox Trial Finder Ambassador who is committed to spreading the word about the critical importance of participation in PD clinical trials.
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  • Michael Vanek is Participating in Every Clinical Trial He Possibly Can

    Michael Vanek is Participating in Every Clinical Trial He Possibly Can

    “I will continue doing this until they don't need me anymore,” says Michael Vanek. “It’s an exciting time to have Parkinson’s.” Michael also encourages other patients to participate in PD trials.
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  • A Family Affair: The Genetics of Parkinson's Disease

    A Family Affair: The Genetics of Parkinson's Disease

    Guest blogger and MJFF Patient Council member Genia Brin writes about finding out her genetic status and what it means for Parkinson's research.
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The Parkinson's Progression Markers Initiative is changing how patients, families, doctors and scientists think about brain disease. Now it needs you.

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