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Advocate

Advocacy Resources

By raising our voices together, we can influence public policy.

As people living with Parkinson's disease and their loved ones know, you are — and often must be — your own best advocate. No one knows Parkinson's better than those who live with it every day. When you share your story and experiences with lawmakers, you help them understand how their policy actions impact patients, families and care partners.

Anyone can become an effective advocate. It can be as simple as picking up the phone or sending an email to your Congress member to let them know how their vote will directly affect you. Or, you can visit your representative at his/her office or a town hall meeting. Social media is also a good way to connect with your legislators. And, you can write about Parkinson’s-related policy issues for your local news outlet.

Download The Michael J. Fox Foundation's advocacy toolkit for tips on sharing your story, printable documents to take to face-to-face meetings with members of Congress, and sample telephone scripts, email messages and social media posts.

Additional Resources

  • Parkinson’s Policy Priorities

    Our Parkinson’s Policy Priorities contains information on current policy issues, including talking points you can use to communicate with members of Congress and their staff as well as printable fact sheets you can share with them directly.

  • Public Policy Brochure

    Learn more about MJFF’s public policy priorities and share with others who may want to get involved.

  • Government Overview

    Learn about the legislative process and read a glossary of policy terms.

  • Advocacy Presentation

    Use this PowerPoint to educate your peers and support group members on the ways public policy can affect Parkinson's research and care.

  • Advocacy Flyer

    Print this document and take it to local events to encourage others to get involved.

  • Updates from Washington

    See how our community is making a difference in Washington.

  • Congressional Caucus

    Learn about the Congressional Caucus on Parkinson's Disease and ask your members to join.

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