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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Couple Together

    My Research Journey: A Path to Discovery Through Genetics

    From a family history of Parkinson's to a surprising genetic discovery, follow Sherry's personal journey to find answers for her family through groundbreaking research.
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  • Diana Rodriguez

    My Research Journey: Changing the Narrative From Fear to Action

    An avid optimist, Diana Rodriguez was determined for her Parkinson's diagnosis to serve a greater purpose, leading her to research participation.
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  • Couple together

    Our Research Journey: “This is the in Sickness and in Health Part”

    Husband-and-wife duo show unwavering love and support by participating in our landmark study together.
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  • Hiking

    My Research Journey: Finding Information and Optimism

    Wanting for hope and direction after an RBD diagnosis, Cindy Roach found our PPMI study.
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  • Bill Bucklew smiling

    An Open Letter from Someone With Smell Loss

    MJFF Patient Council member shares his experience with smell loss, which can be an early signal of Parkinson’s disease.
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  • Marcy Schaeffer

    My Research Journey: Doing my Small Part to Support People with Parkinson’s

    Marcy Schaeffer, 68, is a volunteer in the Foundation’s landmark Parkinson’s Progression Markers Initiative (PPMI). She lives with smell loss, which can be an important signal of risk for Parkinson’s…
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  • Allen in Venice

    My Research Journey: How an RBD Diagnosis, Not Parkinson’s, Led to Joining a Landmark Study

    Allen Dance shares his experience with REM sleep behavior disorder and how it led him to the Parkinson’s Progression Markers Initiative.
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Woman and Mom

Join the Study that's Changing Everything

Researchers are studying the link between sense of smell and brain health. People with and without Parkinson's can help by taking a scratch-and-sniff test. It’s free, mailed to your home and takes just 15 minutes to complete.

Get Your Test Today
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