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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Couple Together

    My Research Journey: A Path to Discovery Through Genetics

    From a family history of Parkinson's to a surprising genetic discovery, follow Sherry's personal journey to find answers for her family through groundbreaking research.
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  • Diana Rodriguez

    My Research Journey: Changing the Narrative From Fear to Action

    An avid optimist, Diana Rodriguez was determined for her Parkinson's diagnosis to serve a greater purpose, leading her to research participation.
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  • Couple together

    Our Research Journey: “This is the in Sickness and in Health Part”

    Husband-and-wife duo show unwavering love and support by participating in our landmark study together.
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  • Hiking

    My Research Journey: Finding Information and Optimism

    Wanting for hope and direction after an RBD diagnosis, Cindy Roach found our PPMI study.
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  • Bill Bucklew smiling

    An Open Letter from Someone With Smell Loss

    MJFF Patient Council member shares his experience with smell loss, which can be an early signal of Parkinson’s disease.
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  • Marcy Schaeffer

    My Research Journey: Doing my Small Part to Support People with Parkinson’s

    Marcy Schaeffer, 68, is a volunteer in the Foundation’s landmark Parkinson’s Progression Markers Initiative (PPMI). She lives with smell loss, which can be an important signal of risk for Parkinson’s…
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  • Allen in Venice

    My Research Journey: How an RBD Diagnosis, Not Parkinson’s, Led to Joining a Landmark Study

    Allen Dance shares his experience with REM sleep behavior disorder and how it led him to the Parkinson’s Progression Markers Initiative.
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Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative (PPMI) is our landmark study. It gathers information over time to learn more about how brain disease starts and changes and how to stop it. Now it needs you.

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