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Guides for Living Well with Parkinson's

In easy-to-read, downloadable guides, movement disorder specialist Rachel Dolhun, MD, and other experts provide practical tips and real-world advice for navigating life with Parkinson's disease

  • The Language of Parkinson’s: Common Terms to Use with Your Doctor

    As more treatments for Parkinson’s become available for doctors to prescribe to their patients, it is important to review how PD is discussed in research and care. For greater confidence in talking with your doctor and managing your symptoms, familiarize yourself with commonly used terms.

  • Visiting with Family Members Who Have Parkinson's

    When visiting family who have Parkinson's, you may not know what to expect or how to talk about and manage change. In this guide, Dr. Dolhun provides practical tips on preparing for and getting the most out of your visit.

  • Stress and Parkinson’s Disease

    Stress comes in many shapes and sizes, but we all have it. For people with Parkinson’s, stress can bring on or worsen symptoms. It might increase tremor or bring on a freezing episode (a sudden, temporary inability to move). Here are a few tips to help lessen stress and defuse tense situations.

  • Summer, Travel and Parkinson’s Disease

    During the warmer months, people with Parkinson’s disease may need to take extra precautions to make the most of experiences while outdoors and on vacation. Consider these five tips this summer.

  • Talking to Children and Teens about Parkinson's

    No matter when or how Parkinson's enters a child's world, they will likely have questions about the disease and also fears or misinformation. This guide offers practical tips to help you have a productive conversation about Parkinson's with children of all ages.

  • Repurposed Therapies in Parkinson's Disease

    Repurposing — studying approved medications to see if they have benefit in Parkinson's — can potentially speed drug development. This guide discusses how drugs are repurposed and what you should consider if you are thinking about taking a repurposed therapy while it's in testing for Parkinson's.

  • Sharing Your Parkinson's Diagnosis at Work (Part One)

    If you are considering sharing your diagnosis in the workplace, use this guide to help you outline your strategy, create talking points, deliver your news and navigate others' reactions.

  • Talking about Parkinson's at Work (Part Two)

    After you've shared your diagnosis in the workplace, use this guide to help continue the conversation, manage long-term professional relationships and plan for situations you may face at work.

  • A Practical Guide on Sleep and Parkinson's Disease

    Many people with Parkinson's have trouble falling or staying asleep. For some people, the cause is Parkinson's disease; for others it may be a medication side effect. This guide outlines common sleep problems and their treatments and offers tips for good sleep.

  • Parkinson's Disease and Diet

    No single diet can treat Parkinson's, but a healthy, balanced diet can improve well-being and ease certain non-motor symptoms. What you eat also may affect how well your medication works. This guide offers tips on what to include in your diet for general wellness, non-motor symptoms and medication benefit.

  • You, Your Loved One and Parkinson's Disease

    Lonnie Ali, wife of the late Muhammad Ali and member of The Michael J. Fox Foundation's Founders' Council, offers advice about Parkinson's and relationships and how to balance caring for a family member and yourself.

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