Skip to main content

New York Passes Legislation to Establish a Parkinson’s Disease Research Registry

New York's Empire State Plaza

Photo Credit: New York State Senate

On May 16, 2024, the New York State Assembly unanimously passed critical legislation to establish a statewide Parkinson’s disease research registry, sending the bill to Governor Kathy Hochul’s (D) desk to be signed into law!

On April 3, 2024, the State Senate unanimously passed the bill (S.4674A) for the second consecutive year, sending the bill to the Assembly (A.5803B). While the legislation did not come up for a vote in the Assembly last year, we’re celebrating its passage this year thanks in part to the perseverance of Parkinson’s advocates and organizations, including The Michael J. Fox Foundation.  

First introduced in 2023 by State Sen. Brad Hoylman-Sigal (D-47) and Assemblymember Amy Paulin (D-88), the bill empowers the New York State Department of Health to create the infrastructure needed to collect helpful information about the 65,000 people living with Parkinson’s in the state and those diagnosed in the future.  

As the bill awaits Governor Hochul’s signature, New York is on the brink of joining nearly a dozen states that have created statewide Parkinson’s research registries by passing legislation.  

If you live in New York, stay tuned — we’ll be sharing more information and ways to advocate as this bill becomes state law!  

In the meantime… 

We use cookies to ensure that you get the best experience. By continuing to use this website, you indicate that you have read our Terms of Service and Privacy Policy.