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The Route to Cures, a Patient Centered Model
May 25, 2012
… We're honored to host this guest post from Perry D Cohen PhD. Dr. Cohen is … Pipeline project , which he founded in 2002, he has become an international thought leader and speaker/writer on … the patient perspective in regulatory decisions, especially where it differs from the scientists’ views. For example, we …
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Seven Misconceptions about Living with Parkinson's Disease
April 1, 2016
… live with Parkinson's, you're well aware of the varied symptoms that can be part of the disease. For those without … however, misconceptions about life with Parkinson's can be common and don't reflect the reality of the disease. This … dose. Sleep patterns, fatigue and mood can also be unpredictable with the disease. Misconception: Tremor is the …
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Three Questions for a Researcher With Emily Drabant, PhD, Research Development Manager at 23andMe
July 23, 2012
… Drabant wears many hats in her role at personal genetics company 23andMe. A neuroscientist trained at the Stanford University School of Medicine, Emily is asked to juggle a variety of tasks managing 23andMe’s Parkinson’s … and communicating about this research with the public and press. MJFF spoke with Emily for the inaugural installment …
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Studying Changes in Glucocerebrosidase Activity in People with Parkinson's Disease
… large amounts of this protein. The aim of this study is to determine how well the GCase protein functions in monocytes from the blood of people diagnosed with PD. Hypothesis: We hypothesize that the GCase protein … as a Parkinson's disease indicator measured via a blood test. Our results may also help to determine who will …
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Making the Most of Your Time with Your Parkinson’s Doctor
November 9, 2016
… Parkinson's disease Advocate Friend or family member Doctor or medical care provider Support group Local or national … had PD I am a researcher, clinician or work with the PD community Other Diagnosis Date ${selected} Jan Feb Mar Apr … patients only see their doctor a few times a year. Visits tend to be short and leave limited time to discuss …
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Dealing with Parkinson's Disease Caregiver Stress and Burnout
September 21, 2015
… disease diagnosis, and all the care coordination that comes with it, can be very stressful. Many caregivers spend … a full-time job. Even in stressful moments, it's important to remember that prioritizing your own health allows you to … isn't in your budget, try hiring a home health aide to come visit for just a few hours a week or month. It gives you a …