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Qualitative Evaluation of Draft Questionnaires for Patient-reported Outcome Measures of Non-motor Symptoms in Early-stage Parkinson's Disease
… need for fit-for-purpose, clinical outcome assessments for early-stage Parkinson’s disease (PD) to be used in clinical … relevant to people with PD in the first three years after diagnosis. Study Design: This study will be conducted in … of Parkinson’s disease: The project will impact PD research and treatment protocols by providing questionnaires …
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My Research Journey: Finding Information and Optimism
August 6, 2024
… sleep, she was handed a REM sleep behavior disorder (RBD) diagnosis from a sleep doctor in 2022. RBD is a condition in which people act out their dreams and can be an early signal of Parkinson’s. “He told me, ‘Most people with … condition; I hope that more treatments come out of this research,” she said. She’s also pleased with the study team …
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#FoxGala Raises Five Million for Research
November 16, 2015
… benefit gala. Raising more than $5 million for Parkinson’s research, guests of the gala were treated to a Marty … to balance the demands of his career with his Parkinson’s diagnosis, “To go out in front of a crowd of strangers … the five million raised will go directly to fund promising research. To date, Funny Thing has raised more than $65 …
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Research Recap from Movement Disorders Society Congress
June 26, 2015
… Disease and Movement Disorders in San Diego. Physicians, researchers and allied health care professionals from around … dysfunction as part of his newly profiled disease in the early 1800s, but these symptoms persist. Surveys report 30 … therapies? Learn more about how MJFF is supporting research into GBA. MJFF staff Rachel Dolhun, MD, and Maurizio …
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Landmark Research Study for Your Patients
… physician, you can empower your patients to get involved in research toward a cure. Our landmark study is urgently … research participation gave her a sense of control over her diagnosis. Physician Toolkit Below are materials to help … Parkinson's before they start medication? Enrolling people early in their disease course allows volunteers to …
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Harnessing AI for Parkinson's Research
December 14, 2018
… patients about symptoms. Since then, we have supported more research using artificial intelligence to analyze … , Mark Frasier, PhD, our senior vice president of research programs explains: "Today our challenge is to … with AMP PD and BRAIN Commons . Important insights into Parkinson's disease and how to treat it lie in the data …