The Michael J. Fox Foundation (MJFF) has stepped up efforts to connect locally with the Parkinson’s community, and with support groups in particular. “It’s an opportunity for patients to hear about the latest news in Parkinson’s research and for us to learn from patients,” said Seanna Bruno, associate director of advancement, who frequently updates support groups on Parkinson’s drug development and the Foundation’s strategy to speed a cure.
Groups have the opportunity to learn about recent research breakthroughs toward better treatments for Parkinson’s and the Foundation’s research programs — as well as how individuals and communities can help speed a cure by signing up for Fox Trial Finder and participating in clinical trials, or by supporting local Team Fox events.
Many patients travel miles to attend. “It gives them a sense of hope knowing that someone is really doing something on their behalf — to help us get to a cure, and sooner,” said Eden Feldman, director of outreach at the University of South Florida Parkinson’s Disease and Movement Disorders Clinic in Tampa, who recently invited Seanna to address six local groups. “It’s a big deal to hear directly from MJFF.”
If your patient or caregiver support group is interested in hosting a presentation by a Foundation representative, please contact Kara Lohse at (212) 509-0995 ext. 283 or firstname.lastname@example.org.