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COVID-19 Limited Series: The Pandemic and Parkinson’s Research
May 20, 2020
… episode, we explore how COVID-19 is affecting Parkinson’s research. Michael J. Fox Foundation Patient Council member … Officer of MJFF, about: The state of Parkinson’s disease research and MJFF’s response Why Parkinson’s researchers need support now Participating in online …
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Advocating for the Patient Voice in Research Ethics Discussions
June 12, 2014
… Earlier this week MJFF Senior Vice President of Research Partnerships Sohini Chowdhury spoke to the … the vital need for the patient voice in discussions around research ethics. In particular, Sohini discussed the … Flash Video” for Session 4: The Potential of Neuroscience Research. Sohini begins at the 11:19 mark. Learn more about …
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Ways to Advance Parkinson’s Research Online During COVID-19
May 14, 2020
… The coronavirus pandemic is affecting Parkinson’s research. While some clinical trials have paused, there are … still opportunities to contribute and advance Parkinson's research from home. Participation still matters because across all research, 85 percent of clinical trials face delays and 30 …
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NIH Hosts Workshop on Clinical Research Recruitment and Retention
August 19, 2014
… trials, and to promote a sense of partnership among researchers and participants. Jamie Roberts, MA, CCRP, … and academic institutions participated, as well as researchers, clinicians, and research coordinators. MJFF: What challenges and …
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No Time to Ease the Pedal off Parkinson’s Research
September 26, 2013
… new show is not cause to ease the pedal off of Parkinson’s research. I wrote an op-ed for Scientific American that … about how we can expand our existing strategies to speed research toward a cure. One of the main points of the piece is that we need to work more and work better with our research volunteers. Keeping courageous patients and …
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Research Perspective: The Growing Importance of Digital Disease Measures
June 30, 2020
… people with Parkinson’s, away from a doctor’s office or research site. More people are being treated through … clinical trials have begun exploring new ways to conduct research remotely. And doctors and researchers need a way to understand Parkinson’s disease, …