Books & Resources

A book chronicling the life of Brian Hall, who has lived with Parkinson’s disease (PD) since 1976. His symptoms first appeared at 14 years old, and it took another 14 years for him to be diagnosed. After a 20 year history of taking PD medication, Deep Brain Stimulation (DBS) surgery was his only option. DBS proved so successful that Brian was able to discontinue his medications for PD. He remains medication free and has been for the last 16 years. Since DBS, Brian took control of his health through diet, exercise and cycling, achieving things he never thought possible. His book details how Parkinson’s impacted his life and how he has learned to deal with his pain.

People and families with Parkinson’s think about deep brain stimulation (DBS) for different reasons and at different times in their journey. In this illustrative poem book, MJFF community member and person living with Parkinson’s John Foley describes his personal journey with DBS from decision-making to daily life with the device. To learn more about John’s story, click the link to download a free copy.

Michael Kinsley’s newest book is a humorous collection of essays that discusses his experience with Parkinson’s disease (PD) in the larger context of an aging generation.

One in 37 is a full-length, 60-minute documentary shared by Cure Parkinson's NZ. The documentary tells the personal stories of five individuals living with Parkinson’s disease and highlights the New Zealand research effort to develop therapies that can stop or slow disease progression. It also breaks down some of the myths and misunderstandings surrounding Parkinson’s disease. A cure is a very real possibility, it is just a matter of when.

A young boy learns about his grandfather's illness, Parkinson's Disease. Told from a child's perspective, the character observes changes in his grandfather and wants to understand as well as wants to help. This heartwarming children's storybook captures the bond between grandfather and grandson as they experience what it means to have Parkinson's Disease.

The Parkinson Association of the Rockies connects and empowers people with Parkinson’s to thrive. Through support groups, exercise classes and in-home consults with a Licensed Clinical Social Worker, the Association connects people to the community and critical resources. Exercise classes, education, newsletters, and equipment loan services further empower people with Parkinson’s to thrive. Advocacy efforts empower, engage and connect people with Parkinson’s to use their voice and passion to enhance the care and services available for all people living with this disease. The Association celebrates people with Parkinson’s defining their disease rather than letting the disease define their lives.

“Songs of Hope” features a superb collection of music from a virtual “who’s who” of singers/songwriters, including Bonnie Raitt and David Crosby & Graham Nash.

After her husband is diagnosed with Parkinson’s disease and Lewy body dementia, Ava Butler begins journaling her experiences caring for her husband. This memoir offers Butler’s personal reflections on losing a spouse to disease.

The author describes his experiences as a sufferer of Parkinson’s disease, depicts his search for an effective treatment, and explains how he learned to cope with the illness

(Paperback published 1981 by Seven Locks Press)

The second edition of this accessible and comprehensive guide provides crucial information for managing this complex condition, including details on the use of medications, diet, exercise, complementary therapies, and surgery. (Paperback published 2001 by Johns Hopkins University Press)