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Data Resources

Fox Insight

  • Dataset Overview

    Fox Insight is an online clinical study building a large, diverse cohort of people with Parkinson’s and age-matched control volunteers who share information into the lived experience, genetics, and variability of Parkinson’s disease. Participants complete regular questionnaires and can also choose to contribute genetic data collected through a collaboration with consumer genetics company 23andMe and answer one-time surveys on topics relevant in Parkinson’s. New data is added to the platform monthly. The goal of the study is to provide Parkinson’s researchers with a rich dataset combining patient experiences with genetic risks and modifiers that can be used for discovery, validation, and reproducibility. 

  • Data Characteristics

    Study Subjects:

    • Nearly 50,000 participants and growing
    • English-speaking people with Parkinson's over age 18
    • English-speaking control volunteers over age 18

    Available Data:

    • Demographics and patient-reported outcomes from validated instruments assessed at routine intervals
    • Information from one-time surveys on timely Parkinson’s-related issues (e.g., medical cannabis use, COVID-19 impacts)
    • Wearable device data from a subset of participants
    • Genetic data from subjects with Parkinson's disease 
  • Associated Data Distribution Platform

    Data collected through the Fox Insight online clinical study is available to qualified researchers through the Fox DEN platform.

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