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Real Talk from Participants
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Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • Man and woman smiling at camera.

    My Research Journey: I Don’t Have Parkinson’s, but I’m Helping Researchers Get to the Bottom of It

    Terry Goldin shares his experience living with REM sleep behavior disorder and participating in the Parkinson’s Progression Markers Initiative study.
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  • People in formal attire smiling at camera

    PPMI Participants Share Their Experiences: “Knowledge Is Power”

    We highlight four participants speeding a cure in our landmark Parkinson’s Progression Markers Initiative.
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  • Man and woman smiling at camera.

    My Research Journey: I Don’t Have Parkinson’s, But I Could Help Stop It

    Brian Duggan shares what it’s like to live with REM sleep behavior disorder and to participate in research as part of the larger “at-risk” Parkinson’s community.
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  • Woman sitting in wheelchair at doctor's office

    My Research Journey: A Practical Way of Managing Parkinson’s

    Jen Gaudio, one of the first ever PPMI participants, shares why she participates in research as a practical and constructive way to manage Parkinson’s.
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  • Two people smiling at the camera outside.

    My Research Journey: “It’s Never Too Early to Make a Difference”

    Phil Alongi, 67, was diagnosed with Parkinson’s in 2019 and is participating in MJFF’s landmark study to contribute toward a future without PD.
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  • People in formal attire smiling at camera

    My Research Journey: How My Family History Led Me to a Worldwide Parkinson’s Study

    Susan Levy, 68, guest blogger, participates in a Parkinson’s research study as a tribute to her mother who lived with the disease for many years.
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  • Man and woman smiling at camera.

    My Research Journey: Sharing My Perspective as a Care Partner

    Prentis Brooks, 59, shares his perspective participating in research as a care partner of his wife, Christie, who has PD.
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Join the Study that's Changing Everything

The Parkinson's Progression Markers Initiative (PPMI) is our landmark study. It gathers information over time to learn more about how brain disease starts and changes and how to stop it. Now it needs you.

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