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We are charting the path to a future free from Parkinson’s. Your support will get us there.

About Our Campaign
Participate in Research

Real Talk from Participants

People with Parkinson's and control volunteers share their advice and perspective on joining clinical studies and being an active participant in the quest for a cure.

  • PPMI Patient Committee Member to Scientists: 'You Give Us Hope'

    PPMI Patient Committee Member to Scientists: 'You Give Us Hope'

    PPMI Patient Committee member Jean Burns discusses her experience at the study's recent Annual Meeting.
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  • Clinical Research Participation Gives One Patient New Reasons for Hope

    Clinical Research Participation Gives One Patient New Reasons for Hope

    “We will only get new drugs if people volunteer,” says Betsy Barber, of Tampa, Florida. That’s among the many reasons she as participated in eight clinical trials since her diagnosis 12 years ago.
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  • “A Very Educational Experience:” One Patient’s Perspective on Participating in the Pioglitazone Study

    “A Very Educational Experience:” One Patient’s Perspective on Participating in the Pioglitazone Study

    With a son as a surgeon and a daughter-in-law as a drug rep, Al Charles’ family understands the need for increased participation in clinical trials—especially among newly diagnosed patients.
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  • A Search for Answers Leads One Patient to Genetics

    A Search for Answers Leads One Patient to Genetics

    Sharon Rybicki of Sarasota, FL, was diagnosed with Parkinson’s in 1998. Only 43 years old at the time, she was devastated by the news. Here is part of her story.
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  • Why Not Participate? One Patient’s Perspective on Genetic Research

    Why Not Participate? One Patient’s Perspective on Genetic Research

    For many, the decision to participate in genetic research is not a trivial one. But for Gary Schmitz, he didn’t think twice. “For me,” he says, “the question was why wouldn’t you want to contribute?”
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  • Steve Gorny plans to "B.R.E.A.K. Parkinson's" By Running Entirely Across Kansas

    Steve Gorny plans to "B.R.E.A.K. Parkinson's" By Running Entirely Across Kansas

    New Team Fox member Steve Gorny has always been an endurance runner. His resume includes 17 marathons, one 50K run (31 miles), a 100 miler and a Tough Mudder (extremely hard obstacle course run).
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  • Biking for Baha: Four Brothers to Honor Their Grandfather in an 8,000-km Ride across Canada

    Biking for Baha: Four Brothers to Honor Their Grandfather in an 8,000-km Ride across Canada

    Neville Munro was a basketball Olympian, a successful lawyer, published author, financial adviser and member of UBC’s Athletics Hall of Fame. He also lived with Parkinson’s disease for 16 years.
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Woman and Mom

Join the Study that's Changing Everything

Researchers are studying the link between sense of smell and brain health. People with and without Parkinson’s can help by taking a scratch-and-sniff test. It’s free, mailed to your home and takes just 15 minutes to complete.

Get Your Test Today

We are charting the path to a future free from Parkinson’s. Your support will get us there.

Give Today About Our Campaign
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