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Real Talk from Patients
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Education & Inspiration

Real Talk from Patients

Members of The Michael J. Fox Foundation community share their experiences with Parkinson's.
  • PPMI Patient Committee Member to Scientists: 'You Give Us Hope'

    PPMI Patient Committee Member to Scientists: 'You Give Us Hope'

    PPMI Patient Committee member Jean Burns discusses her experience at the study's recent Annual Meeting.
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  • Contributing Editor and PD Patient Shares “The Parkinson’s Experience”

    Contributing Editor and PD Patient Shares “The Parkinson’s Experience”

    Journalist and Patient Council member Dave Iverson expands his activities with the Foundation, joining our team as contributing editor.
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  • Clinical Research Participation Gives One Patient New Reasons for Hope

    Clinical Research Participation Gives One Patient New Reasons for Hope

    “We will only get new drugs if people volunteer,” says Betsy Barber, of Tampa, Florida. That’s among the many reasons she as participated in eight clinical trials since her diagnosis 12 years ago.
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  • Creating a Community for YOPD Patients

    Creating a Community for YOPD Patients

    Bret Parker started a private Facebook group to connect the YOPD community and discuss issues of interest to YOPD, such as disclosure, dealing with the workplace, clinical trials and treatment options
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  • “A Very Educational Experience:” One Patient’s Perspective on Participating in the Pioglitazone Study

    “A Very Educational Experience:” One Patient’s Perspective on Participating in the Pioglitazone Study

    With a son as a surgeon and a daughter-in-law as a drug rep, Al Charles’ family understands the need for increased participation in clinical trials—especially among newly diagnosed patients.
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  • Second Edition of “Every Victory Counts” Program Manual by Davis Phinney Foundation Empowers, Motivates PD Patients

    Second Edition of “Every Victory Counts” Program Manual by Davis Phinney Foundation Empowers, Motivates PD Patients

    This week, the Davis Phinney Foundation announced the launch of its Every Victory Counts manual’s second edition. The manual gives tips and guidance for people living with Parkinson’s disease.
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  • A Search for Answers Leads One Patient to Genetics

    A Search for Answers Leads One Patient to Genetics

    Sharon Rybicki of Sarasota, FL, was diagnosed with Parkinson’s in 1998. Only 43 years old at the time, she was devastated by the news. Here is part of her story.
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