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Data Sets

The Michael J. Fox Foundation strives to make Parkinson’s disease data available to the broader research community to accelerate the next generation of treatments. Through our sponsored studies, we have collected or acquired clinical, imaging, genomics, sensor and patient-reported data. We believe data sharing is critical to making research discoveries and work to make our data as accessible as possible through collaborative efforts.

10 Types of Data Available

  • Parkinson’s Progression Markers Initiative
    Population:
    De novo, unmedicated PD; prodromal; genetic; controls
    Cohort Size
    1,500+

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • Fox Insight
    Population:
    PD; controls
    Cohort Size
    35,000+

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • BioFIND
    Population:
    Moderate to advanced PD and controls
    Cohort Size
    ~200

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • LRRK2 Cohort Consortium
    Population:
    Genetic
    Cohort Size
    3,200

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • DATATOP
    Population:
    Early, unmedicated PD
    Cohort Size
    800

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • Parkinson@Home Feasibility Data
    Population:
    PD
    Cohort Size
    ~950

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • Levodopa Response Trial Wearable Data
    Population:
    PD
    Cohort Size
    30

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • PD Smartphone Data Challenge
    Population:
    PD and controls
    Cohort Size
    16

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • FS-1
    Population:
    de novo, unmedicated PD
    Cohort Size
    ~195

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

  • FS-Too
    Population:
    early, unmedicated PD
    Cohort Size
    ~195

    • Longitudinal

    • Interventional

    • Cross-sectional

    • Curated

    • Harmonized

    • Clinical Data

    • Imaging Data

    • Associated Samples

    • Omics Data

    • Wearable Sensor Data

Verily Study Watch, an investigational medical device.

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The Michael J. Fox Foundation partners with biotechs, pharma and health tech companies in various ways to advance our shared goals.

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