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Bionic Dystonic: How I Advocate for Dystonia Awareness
September 23, 2016
… is a guest blogger from Los Angeles who has lived with dystonia for five years after being diagnosed in his … channel shares his personal story and experience with dystonia. There was a time when I had to live life with my … in the United States with the neurological disorder of dystonia . September is Dystonia Awareness Month and …
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Team Defeat Dystonia Completes First Super Sprint Triathlon
October 7, 2015
… Members of Team Defeat Dystonia celebrate post-race On Saturday, September 26, Team Fox member Ali London led the newly formed Team Defeat Dystonia into the waters and backroads of Rye, New York for … The 78-member team — including four athletes with dystonia and one with Parkinson’s disease — participated in …
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Fox Foto Friday: Celebrating Dystonia and Parkinson's Research Advances
May 15, 2015
… collaborative research alliance with The Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF) in New York City. … the inaugural Bachmann-Strauss Prize for Excellence in Dystonia Research on Xandra O. Breakefield, PhD, professor … recognizes her groundbreaking discoveries in the field of dystonia genetics: Dr. Breakefield led a team that in 1997 …
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Video: Advancing Dystonia Research with the Bachmann-Strauss Foundation
May 27, 2015
… When Bonnie Strauss was diagnosied with dystonia , an under-recognized and under-funded movement … disorder, she was inspired to found the Bachmann-Strauss Dystonia and Parkinson Foundation (BSDPF). Twenty years … research alliance with BSDPF and a new prize awarding dystonia research, conferred at a May 2015 gala . Watch …