Learn more about Parkinson's and managing disease with these books, products and organizations, suggested by our community.
Together for Sharon
Together for Sharon is a movement to raise awareness and band together in search of a cure for Parkinson's disease. Started by a loving son's journey to keep the memory of his mom Sharon Riff Ackerman's memory alive, Together for Sharon helps spread awareness and educational resources for people and families impacted by the disease.
Parkinson's: How to Reduce Symptoms Through Exercise
Kristina Meldrum, BA, ACE, Jay Alberts, PhD, Daniel M. Corcos, PhD
Written by leading Parkinson’s experts Kristine Meldrum, BA, ACE, Jay Alberts, PhD, and Daniel M. Corcos, PhD, comes an informative and engaging new book: Parkinson's: How to Reduce Symptoms Through Exercise. This book gives instructions, based on scientific studies and the authors’ recommendations, on how to make your own “PD Exercise Cocktail Plan™.” The many detailed chapters and appendixes will also be a resource to guide you and your family throughout your PD journey.
Supported by Columbia University Irving Institute for Translational Science
The PD Movers - We Keep Moving storybook is a compilation of narratives of African American and Black individuals and caregivers who are living and thriving with Parkinson’s disease (PD). Supported by Columbia University Irving Institute for Translational Science, the authors hope these stories will educate others by removing the mysteries and misconceptions of PD and provide useful resources regarding diagnosis and treatment to allow others to thrive with the disease.
The PD Avengers are a global alliance of people living with Parkinson’s, partners and friends, standing together demanding change in how the disease is seen and treated. As a patient led organization, the PD Avengers add urgency to research, wellness and advocacy by uniting people and organizations to the cause of ending Parkinson’s disease. Learn more at www.pdavengers.com
MJFF founding Patient Council member Dave Iverson is a retired broadcast journalist, filmmaker, and the author of "Winter Stars: An Elderly Mother, an Aging Son and Life's Final Journey." Iverson’s memoir offers an intimate, unvarnished portrait of navigating life’s obstacles and caring for our loved ones.
The Wellness Principles: Cooking for a Healthy Life
Gary Deng, MD, PhD, Medical Director of Integrative Medicine at Memorial Sloan Kettering Cancer Center
From a world-renowned and beloved doctor, an accessible guide with 100 delicious tried-and-tested recipes for healthy living — to eat well, live well, and stay well. Tapping this holistic approach, The Wellness Principles also touches on healthy living beyond the plate through physical exercise, stress management, better sleep, and complementary therapies.
After receiving a Parkinson’s diagnosis, Torrance York focused her camera on the goal to integrate this life-altering information into her sense of self. In Semaphore, her response to this personal challenge, York presents a visual journey of poetic images that articulate the shift in her perspective post-diagnosis. York’s quiet, generous and luminous photographs bare human vulnerability, while inspiring optimism and connection. Semaphore includes 67 photographs and texts by York and Rebecca Senf, PhD.
Gloria Gottesman was diagnosed with Parkinson’s in 2012. Wishing she’d had a positive way to explain Parkinson’s disease to her own grandchildren, she wrote a book, Pilot to Co-Pilot, for families to share with their children to take the scare out of Parkinson’s disease. The book is illustrated by her granddaughter, Ellie.
Clinically Reviewed by: Alberto J. Espay, MD, MSc, FAAN, FANA
Life With Parkinson’s: 50 Facts & More — a modern lifestyle manual for living with Parkinson's disease — is filled with thoughtful and salient insights. This user-friendly reference — packed with detailed illustrations and inspirations — is meant to be saved, shared, and constantly referred to. It's also perfect for care partners and families. Now available in Hardcopy & Kindle via Amazon. Learn more at www.50Facts.com.
MJFF Patient Council member Larry Gifford, diagnosed with PD in 2017, hosts the inspiring, engaging and honest podcast “When Life Gives You Parkinson’s.” Through laughter and tears, Gifford and his family have opened their lives to the listeners and introduce us to how they and others in the Parkinson’s community are dealing with the symptoms and progression of the disease.