Learn more about Parkinson's and managing disease with these books, products and organizations, suggested by our community.
A Soft Voice in a Noisy World
A culmination of over twenty years of personal experience, in A Soft Voice in a Noisy World Karl Robb provides an assortment of tips and suggestions that have made a difference in his life and benefited him in his personal struggle with PD.
There are many words to describe Michael J. Fox. Actor. Husband. Father. Activist. But readers of Always Looking Up will soon add another to the list: Optimist. Michael writes about the hard-won perspective that helped him see challenges as opportunities.
The American Parkinson Disease Association (APDA) is the largest grassroots network working tirelessly to provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest. APDA has a unique nationwide system of Chapters and Information & Referral Centers, delivering education, support, and patient services to Americans with PD each day. Since its founding in 1961, APDA has raised and invested more than $170 million to provide outstanding patient services and educational programs, elevate public awareness about the disease, and support research designed to unlock the mysteries of PD. Learn more at www.apdaparkinson.org.
In 2014, The Bachmann-Strauss Dystonia & Parkinson Foundation formed a collaborative research alliance with MJFF and established The Bachmann-Strauss Prize for Excellence in Dystonia Research to broaden public awareness and recognize key scientific discoveries in dystonia.
Brain Storms: The Race to Unlock the Mysteries of Parkinson's Disease
In his latest book, journalist and friend of the Foundation Jon Palfreman chronicles how scientists have worked to crack the mystery of what was once called the shaking palsy, from the earliest clinical descriptions of tremors, gait freezing and micrographia to the cutting edge of neuroscience, and charts the victories and setbacks of a massive international effort to best the disease. And he shares inspiring stories of brave individuals living with Parkinson's, from a former professional ballet dancer who tricks her body to move freely
again to a patient who cannot walk but astounds doctors when he is able to ride a bicycle with no trouble at all.
The second book in the Shaky Paws Grampa series, was written to address Parkinson's disease (PD) specifically and to provide a communication tool for people with Parkinson's to use with their children or grandchildren. This book provides details specific to PD symptoms and mentions important issues in the PD world, including deep brain stimulation therapy.
The Davis Phinney Foundation was created in 2004 by Olympic medalist and retired professional cyclist, Davis Phinney, to help people with Parkinson’s live well today. As a national leader of quality of life research, the organization’s singular focus is to provide programs and resources that offer inspiration, information and tools that enable people living with Parkinson’s to take action that can immediately improve their quality of life. Through The Victory Summit® event series, Every Victory Counts® manual, Ambassador program and extensive online content, the organization impacts hundreds of thousands of individuals each year. Learn more at www.davisphinneyfoundation.org.