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Updates from Washington

News from Capitol Hill and statehouses across the country shifts rapidly, so it’s important to stay up to date. Here, you’ll find the latest information on the policies that The Michael J. Fox Foundation and our nationwide network of policy advocates are working on to support the Parkinson's community.


  • Scientist in lab holding up blood sample

    Why We Advocate: Keeping Critical Parkinson’s Programs Funded

    The number of people living with Parkinson's — already over 1 million — is outpacing the amount of federal funding allocated for critical Parkinson’s research and care programs.
    Learn more

  • President Biden signs the National Plan to End Parkinson's Act

    Breaking News from D.C.: President Biden Has Signed the National Plan to End Parkinson's Act Into Law

    President Biden has signed into law the National Plan to End Parkinson's Act, the first-ever federal legislation dedicated to ending Parkinson’s disease.
    Learn more

  • New York's Empire State Plaza

    New York Passes Legislation to Establish a Parkinson’s Disease Research Registry

    On May 14, 2024, the New York State Assembly unanimously passed critical legislation to establish a statewide Parkinson’s disease research registry, sending the bill to Governor Kathy Hochul’s desk…
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  • PAM

    Advocates Celebrate Parkinson’s Awareness Month in Communities Nationwide

    Policy advocates across the country secured local, state and federal proclamations and resolutions to commemorate Parkinson’s Awareness Month and World Parkinson's Day.
    Learn more

  • MJFF staff testifies for NJ PD registry bill

    Shaping the Future of Parkinson’s: 2024 State Policy Wins

    This year, we saw an expansion in state Parkinson’s registries, improved insurance coverage for biomarker testing, new genetic testing protections, increased environmental advocacy and more.
    Learn more

  • 2023 PD Policy Wins

    From the National Plan to a Toxic Chemical Ban: What Your Advocacy Accomplished in 2023

    In 2023, our policy advocates took more than 78,000 actions to help policymakers understand what matters to the Parkinson's community. Find out how your advocacy has moved the needle!
    Learn more

Michael J. Fox in blue sweater posing for the camera.

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By telling your personal story, you can shape policymakers' decisions on issues of importance to the Parkinson's community.

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