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Updates from Washington
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Updates from Washington

News from Capitol Hill and statehouses across the country shifts rapidly, so it’s important to stay up to date. Here, you’ll find the latest information on the policies that The Michael J. Fox Foundation and our nationwide network of policy advocates are working on to support the Parkinson's community.

Capitol Hill

The National Parkinson's Project

The National Parkinson’s Project is a first-ever federal initiative to prevent and cure Parkinson’s disease, treat its symptoms and slow or stop its progression.

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  • Parkinson's policy advocate and MJFF Patient Council member, Kevin Kwok, in Washington, D.C.

    “Find Your Strengths and Use Them with Purpose”: Parkinson’s Policy Advocates In Their Own Words

    Parkinson’s disease policy advocates share what motivates them to join The Michael J. Fox Foundation to help find a cure.
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  • Kentucky State Capitol

    Kentucky Governor Signs Bill to Establish a Statewide Parkinson’s Disease Registry

    On March 25, 2025, Kentucky became the 15th state to take steps to create a Parkinson’s disease registry as Governor Andy Beshear (D) signed a registry bill into law.
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  • Sonny and Joanie Prentice.

    Why I Advocate: Our Family’s Parkinson’s Journey

    Parkinson’s disease policy advocate and care partner, Joanie Prentice, shares her family’s story.
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  • U.S. Capitol Building

    Public Policy and Parkinson’s Disease: Our 2025 Priorities for Federal and State Governments

    The Michael J. Fox Foundation for Parkinson’s Research shares its 2025 public policy and advocacy priorities for federal and state governments.
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  • Michael J. Fox in USA Today

    Michael J. Fox in USA Today: “Let’s Make 2025 the Year Government Commits to Ending Parkinson’s Disease”

    In an opinion piece, our founder reflects on the extraordinary community-led effort to drive research breakthroughs and how the National Parkinson’s Project can capitalize on the momentum.
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  • Kristi LaMonica advocates

    New York Governor Signs Bill to Establish Statewide Parkinson’s Disease Registry

    The state will build a statewide database to track health and demographic information on the estimated 65,000 New Yorkers living with Parkinson’s today and those diagnosed in the future.
    Learn more
  • MJFF’s Director of State Government Relations, Julia Pitcher (second from left) meets with California officials.

    A Historic Year for Parkinson’s Policy: A Federal Law, EPA Ban and More

    In 2024, our policy work reached new heights as the nation’s first federal bill dedicated to ending Parkinson’s disease, the National Plan to End Parkinson’s Act, was signed into law.
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Michael J. Fox in blue sweater posing for the camera.

Patients First

Our Foundation exists for one reason: to speed breakthroughs patients can feel in their everyday lives.

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Join the Parkinson's Policy Network

By telling your personal story, you can shape policymakers' decisions on issues of importance to the Parkinson's community.

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