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My Research Journey: How an Unexpected Diagnosis Led to an Online Community
August 21, 2023
… Allie Signorelli lives in Arlington, VA, with her husband Mike and two kids. She is a … a blog and creating a Parkinson’s-focused Instagram community have helped me remain positive. And a team of …
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PPMI Screener PPMI Online Confirmation
… First Name * Last Name * Email * ZIP Code * Connection to Parkinson's * Please select... I have PD Immediate family … or friend had PD I am a researcher, clinician or work with the PD community Other Privacy Policy Terms & Conditions State …
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Introduction to Fox Insight: A new online Parkinson's study from The Michael J. Fox Foundation
October 27, 2017
… Registration Company/Institution What is your role in PD Research/Care? … Home Page Cancel Register for Webinar Introduction to Fox Insight: A new online Parkinson's study from The … or friend had PD I am a researcher, clinician or work with the PD community Other Diagnosis Date ${selected} Jan …
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23andMe Launches New Consumer Online Experience
October 21, 2015
… Administration (FDA) ordered MJFF research partner 23andMe to stop marketing its direct-to-consumer genetic test for health reports, the DNA testing company has launched its rebranded Personal Genome Service . “We’ve worked with the FDA for nearly two years to establish a regulatory …
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Online Communities Help Caregivers Find Support, Save Time
May 21, 2015
… at the same time. Support groups offer a safe space to vent, but many caregivers struggle to fit meetings into … the more tech literate among them can boot up their computers or use mobile devices to answer all their … Users say these programs allow them to share updates with family and friends without the need to repeat stories. …
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Association of Motor and Nonmotor Symptoms With Health-Related Quality of Life in a Large Online Cohort of People With Parkinson Disease
April 13, 2022
… interest in health-related quality of life (HRQOL) as a comprehensive view of the patient's well-being, guiding … and therapeutic trial outcome measure for patients with PD. The key determinants of HRQOL have not been … populations of people with PD (PwPD). Our objective was to evaluate correlates of health-related quality of life …