Telling your story on Capitol Hill and building relationships with lawmakers are important strategies to accelerate new treatments and find a cure. Taking place virtually this year, the Parkinson’s Policy Forum is a time to unite members of the community and connect with legislators.
On Monday, March 22 through Thursday, March 25, 2021, this free virtual event will bring together community members and researchers from across the country for research updates, policy briefings, advocacy trainings and networking opportunities.
Policymakers need to hear from their constituents and researchers to understand how federal dollars can support scientific progress and people living with Parkinson’s disease. If you have been thinking about getting involved in policy advocacy, this is a great opportunity to start at your own comfort level.
Interested in joining us? Register now to attend. Registration closes Wednesday, March 17.
We are no longer accepting applications to attend virtual meetings with lawmakers. Applicants will be selected strategically based on congressional district. Selected applicants will hear by Thursday, February 25.
Questions? Email email@example.com.
Thank you to our presenting partner:
With additional support from:
American Parkinson Disease Association
The Brian Grant Foundation
The Parkinson Alliance
Parkinson's Unity Walk
Parkinson Voice Project
Northwest Parkinson's Foundation
Houston Area Parkinson Society
Davis Phinney Foundation
Friends of Parkinson's
This year, the Parkinson’s Policy Forum will be hosted on the online platform 6Connex. Find answers to common questions below. A more formal user guide will be provided in advance of the event.
Q. What is 6Connex?
6Connex is an online event platform which allows you to enter a virtual environment similar to an in-person event with opportunities to attend live sessions, view content, interact with others and explore virtual booths.
Q. How do I register?
Register for the Policy Forum here. Once you register, we will make sure you are set up to enter the 6Connex platform on March 22, 2021.
Q. How do I access the 6Connex platform for this event?
A few days before the event, we will email all participants a secure link to join the platform. You will need the email address that you used to complete our registration form. We recommend logging-in prior to the start of the Forum so that you can test the system.
Q. Can I log in on my phone?
Although the platform is supported on a tablet/mobile device, we strongly suggest using a desktop computer.
Q. Which browser should I use?
Chrome and Firefox are recommended by 6Connex. You can choose to use other browsers but please note there may be decreased performance.
Q. Can I test my computer or device in advance?
Yes, on the log in page you can click the “System Check” button to ensure your computer and connection are ready to view the experience. We recommend testing at least 24 hours prior to the start of Forum.
Q. Will my information be shared in the platform?
Attendee information will be searchable and attendees can connect with each other during the event.
Q. What if I miss the “live” event?
No problem! You will be able to log in to the environment after to access content and videos but please note that you will not be able to interact with attendees. We recommend attending the event live for the best experience.
During the Parkinson’s Policy Forum, we will recognize outstanding individuals or groups who advocate on behalf of the Parkinson’s community. The window for award nominations has closed. The award ceremony will take place on Tuesday, March 23 at 4 p.m. ET.
Awards will be given to advocates who:
- Engage with legislators and their staff throughout the year to build ongoing relationships.
- Effectively engage with legislators and the Parkinson’s community on social media.
- Work at the state and local level to pursue Parkinson’s policy.
- Network and recruit additional advocates.
This year, Researcher Hill Day will be part of the Parkinson’s Policy Forum. We invite Parkinson’s researchers to take part in the public policy process and educate Congress on the importance of biomedical research funding. There will be opportunities throughout the Forum to learn how to shape your research story for Capitol Hill. (Learn about the 50 researchers that made a difference during last year's Researcher Hill Day.)
Check back here soon for more information specific to researchers, including details on our Research Poster Session, where you can share your latest findings and how your work gets us closer to better treatments and a cure.
As we approach March 22 — and our day of action on March 25 — more information will come to this page on how to stay active in policy advocacy from home after the Forum. In the interim check out some of our recent policy activities.